A Bad Day Is Better Than No Day

I am finding out with this disease that is so unpredictable, that Sarcoidosis and Fibromyalgia go hand in hand. I am not sure on this but I think that most of us who have been diagnosed with Sarcoidosis by way of biopsy, have also been diagnosed with Fibromyalgia prior to that. The weather has taken a turn towards fall now and with the dipping temps my body is already going into an achy mode. The joints are stiff and everything basically hurts. I am now on day number four of Prednisone to treat the Sarcoidosis. The purpose is to reduce inflammation in my lungs and lymph nodes. It also is supposed to help with joint inflammation. It does have a lot of potentially dangerous side effects however my symptoms have become pretty severe so I have to do something! Anyway, it is not the only medication I am on. I also take meds for muscle cramps, migraine headaches, vitamin B-6 deficiency, vitamin D deficiency, estrogen, and of course one for chronic pain. I pretty much do not have one day when I feel "good" anymore but I try to push my way through my day and smile when I can muster up the muscle! I know I am not alone in this battle... there are many others just like me all over the world whom I have met online. Some are better off than me but there are some worse. I have to be thankful for  each day that I awaken and I am still breathing, for there must be a reason I am still here. So I figure that a "bad day is better than no day."

Joining The Ranks!

Okay...that's it my Sarkie friends... I have officially joined the ranks of the Prednisone People! Today I finally had the appointment that I had waited such a long time for ... one with the pulmonary specialist who deals with Sarcoidosis of the lungs and the lymph nodes. I of course keep very good notes of my symptoms which I have learned is a good idea or else you tend to forget what to mention while you are actually in the doctor's presence. I gave him my list and he of course was concerned but mentioned that the shortness of breath, chest pain, coughing were all typical of Sarcoidosis but all of the other symptoms...well... not sure if they were all Sarc related... and was my primary care doc aware?? Of course... that's why I went to the oncologist in the first place because my primary thought I may possibly have Lymphoma... but the oncologist wanted to label all of my symptoms as Sarcoidosis and now the Sarcodosis specialist is concerned that there is more going on than only Sarcoidosis!! I completely give up!! So .. we decided to go ahead and treat me with Prednisone as so many other Sarc doctors do with their patients and we will just have to see how my body responds to the treatment. So ...I guess I will hang on for the ride! If this does not work or I develop weird symptoms then we will have to try something else like methotrexate. So I have officially joined the ranks of frustration with all of my other Sarc friends who have been through this already and have warned me  and for those who like me are just now going through this and finding out for yourself that the medical profession really knows diddly squat when it comes to this disease!

George Bush: Proclamation 6322 - National Sarcoidosis Awareness Day, 1991

George Bush: Proclamation 6322 - National Sarcoidosis Awareness Day, 1991