Ongoing Sarc Saga

It's an ongoing Sarc Saga! I apologize for not keeping up on my writing lately, but my meds have really been kicking my rear! My lungs seem to be breathing a bit easier, but of course I feel like garbage in spite of that, due to the other issues I guess with my liver, pancreas, lymph nodes, and not to mention aches and pains of the ongoing day to day problems with the Fibromyalgia. I am struggling this past week with my emotions being all over the place and find it very hard to be around anyone. People don't understand if you are emotional of course. They automatically just think you are depressed or crazy or whatever they want to think, I guess; but the fact of the matter is, that prednisone really does mess with your emotions, and as you taper it down you experience some withdrawal symptoms. It seems to be improving as it gets lower, thankfully, and I will be glad to be down to the lowest possible dosage for maintenance. I really would like to not take any meds at all but at this point that seems a bit impractical. The only down side of tapering off the prednisone is that the joint and muscle pain returns with a vengeance. One more day, one more week, but I am still here and for that I am thankful and I will continue to do what I can, where I can, when I can.

Week SIX...NEED A FIX

Here I am ... week six of the Prednisone and I have had two doc visits this week to evaluate how I am doing on this treatment for the Sarcoidosis in my lung and lymph nodes. As for the rest of my bod... who really knows what is going on? Anyway, I had a pulmonary function test and this actually was the best one I have had so far since April, and believe me... I have had plenty of them which ..I am not fond of. Anyway.. the Prednisone must be doing it's job since my lungs are clear for now and the coughing has pretty much slowed down, but of course I am no longer in the house that was built in 1912! I suppose that in itself has a bit to do with it. Lab work was done and the down side is that now that my lung is doing somewhat better, my liver and pancreas are actually worse than they were. Whether this is due to the meds or just due to my illness is another matter of research for the docs I guess, and as far as they are concerned I am going to be a constant visitor in their offices at least once a month for each specialist, if not more frequent than that. In the meantime, in order for me to start sleeping at night, my dosage has been changed and rearranged so now I need to readjust myself to this new arrangement of drug induced stupor for this week!

Week Five... Still Alive....

Yep..I'm still alive and kicking... sorry to all those who were hoping for my demise, but I am still around. It has been a busy couple of weeks, as I have been moving into my place near the hospital. My prednisone seems to be adjusting to my body, or is it the other way around?  Anyway... I sit here at 4 in the morning, wide awake writing, because once I wake up I just can't get back to sleep... another side effect, I guess. The quietness and stillness of this place has an amazingly calming effect on my nerves... a very welcomed thing. I am thinking positively, that as I continue to make some changes in my life that I will actually get better. I am learning to let go of the stressful people and drama and let them stew in their own juice so to speak. I need to now concentrate on me for a change and on the good things God has in store for me. So ... week five... still alive... and so thankful for all that God is doing.