Fibro Future

It's all in God's hands...only He knows what the future holds for me and for each of us Fibro Fighters who are dealing with the many aspects of this disease. I am finding out more and more each day there is so much more to it than I ever even thought existed. I went to the doctor again with new problems arising this week with chest pains and shortness of breath. I had a Spirometry test to measure lung function and didn't do too well....so now am referred to yet another specialist... a Pulmonary Doctor since I may have a Pulmonary Obstruction. I came home thinking to myself...what now??? Can anything else go wrong in this body of mine???? I am so tired of being sick and tired of going to the doctor...tired of tests...tired of trying new meds....but I know that there has to be a reason ....if nothing else, maybe just because it is good for me to just to have to sit and rest, and reflect on God and His promises to me. I know He knows all about what I am going through and knows all about my body. If I didn't have to rest, I wouldn't have met so many sweet friends. If I didn't have to just rest, I wouldn't be doing what I love to do ...write....and I am finding that the more I write, the more I have to write about. This morning, as I woke up at 3:00 am, and not able to get back to sleep, my thoughts went once again to ..."Be Still and Know that I am God....."        Just rest....and trust that He knows, cares, and is with you!

Fibro Frustration

Today is my day...I get to go to the doctor today and try to explain how I am feeling. Isn't that fun? For all of you with Fibro or any other Chronic illness you know it is NOT !  " On a scale of one to ten what is your pain scale, and where are you hurting today?"  What kind of a joke is that? Some days it tops the charts and the pain is in so many places it would take me too long to explain! Then the strange looks that come over the nurses and doctors faces as you do try to explain.....as if what you are saying to them makes absolutely no sense, and it just cannot be possible for one person to have so many ailments all at once! This is how it has been for me for about the last fifteen years or more every time I have been to the doctor,...and many times  have come away wondering to myself if I was just plain old crazy. I am so thankful though, that finally I have a group of doctors who have worked together on my conglomeration of ailments! They have put their heads together, so to speak, and are communicating to each other concerning my treatment. I have a Primary Care Doctor, a Neurologist, and a Gastroenterologist that all work with the same Health Care group so all of my medical information is shared amongst them. I highly recommend this to anyone who has Fibromyalgia since you will be seeing a doctor for so many various symptoms and at this point all they do is treat the symptoms as they occur, basically. It seems that when I have this thing all figured out or so I think, then some new symptom appears out of nowhere to surprise me. I suppose it is a good thing I am going today since I have not been feeling the best for the last few days. Nothing majorly new...however when they ask me, "how do you feel today?"  " Well......Let me see...
My knees are aching, My ears are ringing, My toes are tingling, My head is spinning, My eyes are burning, My body's chilling, My nose is running, My chest is caving, and I wish whoever is stabbing my legs with needles would quit!! Oops!..forgot to mention...I just want to sleep!! So I hope my poor doctor can make heads or tails out of all of this!

Fibro Flare

This is about what I have felt like for the last few days! Only I didn't have the luxury of laying around on a limb! I, of course had things to do, so as usual, pushed myself beyond exhaustion. You would think I would learn by now not to do that. I always pay for it when I do. I pay the piper with painful achy muscles and extreme fatigue; and then comes the headache, migraine, numb feet and whatever else decides to act up all at the same time....maybe throw in some chest pains..........good grief, no wonder the poor doctors don't know what to do with us Fibro patients! Anyway I guess the point I am trying to make to you is that you and I might actually be able to prevent some of these flares if we would really learn to pace ourselves and learn to pay attention when our body is saying slow down and quit pushing. You are not being lazy....you have an illness and it does limit you in some ways from maybe doing everything that you were used to doing. Accept the things that you cannot change and make the most of the good days.