Thursday, July 21, 2011
Tuesday, July 19, 2011
Confusion....no it's not one of my symptoms! It is what is caused when you see too many doctors for the same problem. Right now I am in the middle of trying to figure out which of my doctors I should be listening to and which are full of hooey! When I went to my primary care doctor on Friday of this past week, she urged me to see an oncologist to review the recent pet scan. Keep in mind that this Pet Scan which is supposed to show up cancer, lit up 15 of my lymph nodes. Several were in the upper chest area and several in the lower abdomen. Also the lung nodule showed up which is why I had to have the surgery recently to remove the wedge of my lung. It was not lung cancer, but was said to be sarcoidosis. Also some lymph nodes in the chest were examined and said to be sarcoid. Usually Sarcoidosis affects the lymph nodes in the chest but can sometimes affect the abdomen however it is rare. Sarcoidosis and Lymphoma can co exist in the same patient at the same time so this is the concern of my primary care who has watched my health deteriorate over the past few years and this past year most dramatically. When I mentioned to the Pulmonologist that I would like to see an Oncologist before I decide on a treatment for the Sarcoidosis....my Oh MY....he got very upset and defensive as if I hurt his feelings! It is my life we are talking about here buddy! If I commit to a year long treatment plan on Prednisone as he was suggesting and I have Lymphoma too, then what in the world is the point of me going through all of the nasty side effects? Besides, I was put on Prednisone back in the day about twenty years ago by another doctor who also told me I had "some kind of autoimmune disease" but didn't know or care to find out which, so just dosed me with it. I did not do well on it. Well... after I proceeded to explain to this doctor how rare of a person I actually am...he gave me the referral . I told him I will decide upon a treatment after consulting with the oncologist.