Thursday, July 7, 2011
Well the latest diagnosis is Sarcoidosis! So now that means I have....Fibromyalgia, Sarcoidosis, and possibly Lymphoma? The Lymphoma is an educated guess....but as time goes on will be more clear if it is true. The Pet scan showed up fifteen lymph nodes and the dr told me that usually with this many involved ...even with a diagnosis of Sarcoidosis , there is a strong liklihood of a source of cancer somewhere possibly even the lymph nodes themselves. There have been studies done confirming the link between Sarcoidosis and Lymphoma. But for now... my next step is a visit with my pulmonologist on the 18th, when we will discuss treatment options and future scans,etc. Then my primary doc also will be involved and my neurologist since I have many nervous system problems as well. I am going to use this blog to keep everyone informed as to what is going on and to maybe raise awareness for this unheard of disease! I saw one statistic that said in the US...11 in 100,000 people have it....that is fairly rare and I am one of the 11! I guess I am a special one!