I wonder if anyone else with Sarcoidosis has been having the sleep issues that I have been having. They must since it seems they all talk about chronic fatigue...pretty much I believe the chronic fatigue comes into play because of the fact that I don't ever get a full night's rest. Usually I have no problem falling asleep but within a couple of hours I am wide awake with night sweats, and usually some kind of horrible pain going on. Sometimes all of my joints and bones... sometimes everything... sometimes the headache! Usually I end up taking a second round of pain meds in the middle of the night to make it through the second half. I toss and turn and catch a few winks in between and then around 5:30 or 6 my cute little dog decides it is time to get up! If I happen to just lay there and try to rest then she will search the floor for a sock to dangle in my face. So, in order to avoid that nastiness I usually get up at her prompting. I am OK throughout the morning after my extra strong coffee to get me pumped but about 2 every afternoon I have the worst case of fatigue ever. I don't dare take a nap or I know I won't get to sleep at all at night so I just fight it . I sure wish there was a magic pill that would help me just get the rest I need. In between these few hours of coffee drinking and onset of major fatigue.... is when I have to try to get something accomplished even when my body is telling me to forget it! It takes a lot of "get up and go" to do this when you feel like this every single day! Hats off to all of my other friends with this awful chronic illness that makes you feel terrible...and to all of my friends who have another disease and keep on keeping on day after day in spite of it! Here's to a good night's sleep!
How to deal with a Chronic illness.... symptom by symptom.... one by one! Sometimes the symptoms come faster than one at a time though... and you have to think fast and be resourceful. If you haven't guessed by now, this illness I have has no cure.... just maybe some remedies that may help reduce the symptoms here and there but no cure! Right now I am dealing with my lung, liver, and kidney. Hopefully these issues will subside once I begin the treatment with whatever my doc decides upon at my next visit... either Prednisone or Methotrexate... or whatever? If you have any kind of chronic illness then you also know that each new day may present itself with a different challenge for you. All you can really do in each case is treat the symptom at hand and try to stay as positive as possible. I already have accepted the facts that this is not going away and that it is progressive in nature. All anyone has is one day at a time.... so as each new day approaches and with it a few more unwanted symptoms... I will deal with them , symptom by symptom....one by one.
A new symptom seems to have risen... a very lovely one at that... full body itching. No rash, no bumps, no bites, no hives... just prickly- feeling itchiness! Ahhhhhhhh....very annoying.... it does not make for a good night's sleep. I couldn't even sit through a movie last night but had to interrupt it for a shower to see if that would maybe help me stop itching! Then I decided to take some benedryl along with my normal night pills in hopes that this would at least help me sleep but my spouse decided he was going to stay up and watch TV loudly until 4 am and the pills just somehow did not drown that out. So today here I am once again wondering why I am feeling this prickly itchiness all over...wanting to get up and get out to church but not daring to since I don't want to look like a monkey scratching myself! I got curious once again to see if anyone else with Sarcoidosis had itching, so I looked it up and found out that many do and many have it also with liver enlargement, which I also have ... so I guess it is par for the course and I will just have to cope and not go crazy!!