Friday, September 9, 2011

One Week and Counting

One week! That's what it has been since I began treatment with the Prednisone 20mg twice/day. So far, all I notice is that my lungs seem to be more congested than ever, have had a severe headache just about every day, along with all of my other "normal" aches and troubles. But I am willing to give this a go..... as the docs all tell me I should, since it is supposed to be the drug of choice for Sarcoidosis. I think if I ever actually begin to feel better then I may actually be convinced that it works! Stay positive...they keep saying.... don't think about all of those lymph nodes that lit up on your pet scan! Hmmmm... Maybe I wouldn't even give it a second thought if I felt okay, but the truth of the matter is, I can tell something is terribly wrong in my body. As I sit here this morning, drinking my coffee and thinking, praying, and feeling to be quite honest, crappy, I do have something to be thankful for.... I am still here after my first trial week of Prednisone.

Wednesday, September 7, 2011

Huffing And Puffing Kind Of Day

Oh boy.. this has been a very long tiring day number five on the Prednisone! It started out with my chest hurting and my lungs aching. I couldn't seem to take more than a few breaths in a row without coughing today. It was just one of those huffing and puffing kind of days. I am hoping that after the next Pulmonary function test the doc is going to give me an inhaler so I can breathe a little easier. I guess I am a tad disappointed since I thought I would start to see an improvement in my lung symptoms after beginning the Prednisone but so far the symptoms seem to actually be getting a bit worse. Maybe they get worse before they get better? Anyway I am hoping that I am so tired from coughing today that I will konk out and get a good sleep because I sure am tired! I am hoping for a better Sarc day tomorrow!

Tuesday, September 6, 2011

A Bad Day Is Better Than No Day

I am finding out with this disease that is so unpredictable, that Sarcoidosis and Fibromyalgia go hand in hand. I am not sure on this but I think that most of us who have been diagnosed with Sarcoidosis by way of biopsy, have also been diagnosed with Fibromyalgia prior to that. The weather has taken a turn towards fall now and with the dipping temps my body is already going into an achy mode. The joints are stiff and everything basically hurts. I am now on day number four of Prednisone to treat the Sarcoidosis. The purpose is to reduce inflammation in my lungs and lymph nodes. It also is supposed to help with joint inflammation. It does have a lot of potentially dangerous side effects however my symptoms have become pretty severe so I have to do something! Anyway, it is not the only medication I am on. I also take meds for muscle cramps, migraine headaches, vitamin B-6 deficiency, vitamin D deficiency, estrogen, and of course one for chronic pain. I pretty much do not have one day when I feel "good" anymore but I try to push my way through my day and smile when I can muster up the muscle! I know I am not alone in this battle... there are many others just like me all over the world whom I have met online. Some are better off than me but there are some worse. I have to be thankful for  each day that I awaken and I am still breathing, for there must be a reason I am still here. So I figure that a "bad day is better than no day."